Patient measures health care effectiveness by making comparisons of what physicians do against what they understand, of what they “experience”. In short, patients uses proxy measures- a reasonable default because often, the complexity of medical science baffles even the best of its practitioners.
Illness stories have attracted attention in health care research, as it is an avenue where health care workers and caregivers of patients can “look through the world through the patient’s eyes”. It is an extended view for understanding what the patient’s experiences and struggles are, as well as their finding solutions for their common problems.
I will not forget Samantha. I have seen dying people. I have a few who died on my watch. I can only hold their hands for reasons I couldn’t even fathom. Their name get engraved in my soul.
And so is Samantha’s.